Trexima - sooner rather than later?
August 1, 2006 4:40 pm
There is a lot of hope that the drug Trexima will provide a treatment that is unique to everything else on the market. In spite of the fact that it is really a combination of drugs already available, it looks like the combination and delivery that Trexima has makes it greater than the sum of its parts. As Trexima proves itself, it's likely other similar drugs will become available afterwards. But Pozen, Inc has been having a terrible time actually getting it on the market.
Just when it looked ready for release, the American FDA said they weren't satisfied with the safety information. So now what? More trials? More changes? These things can take years.
Well, it looks like it may be sooner rather than later. Yesterday Pozen announced that it would provide the needed information by the end of the year. This seems to indicate that more trials aren't needed, just an organization of the data that is already available. If all goes well, the drug may yet be available before the end of 2007. Here's hoping they can get everything worked out. But it's probably worth it to check out other options in the mean time - not many of us will be holding out breath.
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Poll - getting headache information
August 2, 2006 10:09 am
When it comes to living with migraine or headache, where do you get the most helpful information? That was our poll question. Here's how you answered:
Obviously, the big winner was the internet at 50%. Of course, that's not surprising, since this was an internet poll on a headache website. Still, with hundreds of visitors everyday, it's true that many people are finding their information online nowadays.
Next on the list is doctors, at 14.7%. That barely beat friends and family, at 12.2%. I would suggest that it's good to have a second opinion when using any of these 3 sources. I get pretty suspicious if I hear something from one person, or see it on just one website, or even if I hear it from the doctor.
Books and other came next, and co-workers, news/media brought up the rear. So - not really a surprise - the big winners were internet, doctors and friends/family.
Be sure to look on the left of the headache and migraine news page for the new poll!
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Highlighting other writers...
August 8, 2006 6:47 pm
It's been a while since I've highlighted a few of the excellent headache or migraine related blogs that are out there. So let me share with you a few recent posts which caught my attention...
From About Headaches/Migraine comes this reminder to prepare your children for school. No, not pencils and erasers - this is for the child with a chronic illness. Read Back To School With a Chronic IllnessWe must say goodbye to My Migraine Battle: On The Forefront. Here is the very last post from Jessica - End of Blog. Be sure to go back and read some of Jessica's earlier entries.And now, from Stream of Unconsciousness: a post about a personal experience with migraine and other illnesses, which raises some interesting thoughts.From The Daily Headache, a post called Pain Pump & Nerve Stimulator Information includes links to more information, including an article with a quick overview of pain therapies. Interesting.Happy Blogaversary to Jackie at Life in the Canadian Desert!
That's just a taste - hopefully I'll be back with more excellent writers again!
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AIDS and migraine
August 16, 2006 8:23 am
This week Canada is hosting the XVI International AIDS Conference. Given the theme of this site, it's given me a chance to wonder where the research is regarding people who are living with both AIDS and migraine.
Without downplaying the seriousness of AIDS, there really is a lot of intertwined connections between these two diseases for which there is no cure. Migraine can further complicate problems that are common to AIDS patients. Of course, the same could probably be said for AIDS and any disease, since HIV can be destructive to every part of the body.
Still, there are unique challenges to the AIDS/migraine patient. For instance, when you're taking so many medications, your body can become resistant. How do you choose what to take? Also, there are specific symptoms that often come from migraine that are also common with AIDS - gastro-intestinal problems, neurological complications (with symptoms such as nausea and headache), and pain in general. AIDS patients must often wonder where the symptoms are coming from, which make them all the more difficult to treat.
Solving the migraine problem would be a drop in the bucket to someone dying of AIDS, but it would still be a benefit to have one less pain to go through in a given day. If any of my readers are living with migriane and AIDS, I encourage you to leave a comment and let us know first hand what unique challenges migraine presents to you, and what you've been able to do about it.
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To our HeadWay subscribers...
August 26, 2006 7:32 am
Our observant HeadWay subscribers may have noticed that the August edition of the free ezine has not yet come out. Why is that? What has happened to the editor? Visitors to migraine sites are often extra-understanding because they know that a migraine attack (or a string of them) can throw off a schedule pretty quick. In this case, however, a migraine isn't to blame. My family and I are in the middle of a major move, and are very much under pressure for the next few days.
Be assured that the newsletter will be ready to go out soon. If it doesn't make it into your inbox in August (which I'm afraid is likely), then you'll hopefully see two issues in September. Meanwhile, be sure to check out one of our many HeadWay back issues, also free on this site.
My thoughts are with many of you who are also going through major moves and transitions at what is for many of you a very busy time of year. Don't let it go to your head - I wish you all a very headache/migraine/pain/symptom-free week!
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